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Welcome to the Data Use Community (DUC)!

The DUC was built to leverage the expertise in clinical care, systems, policy, and data reuse and analysis, along with the field experience available across implementing agencies, ministries, and implementing partners, to create a peer support network of interested practitioners. The DUC’s initial focus is on guidance regarding approaches for enhancing continuity of treatment and interruption in treatment.  We propose to then extend this tested approach to address other evolving priorities that can only be addressed through individual patient-level data.

The DUC will operate in a collaborative and iterative way to support Ministries of Health and country implementers.

The DUC is initially working towards the following goals:

  • Be initiated with founding members with relevant clinical expertise for HIV prevention, treatment, and care, informatics, and data science.
  • Consolidate best practices, drawn from country experience, to a generally applicable and context-specific approach to improve continuity of treatment and reduce interruption in treatment, with specific attention to the data and systems approach.
  • Ensure field experience sharing, improve interagency coordination and collaboration, and integrate group efforts to support program goals.


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titleJoin Us!

If you are interested in joining, feel free to join our mailing list on our website. Also, feel free to contact info@datausecommunity.org if you have any questions.


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Monthly Outlook of Upcoming Meetings of the Data Use Community

The DUC hosts multiple meetings that are open for all to participate and contribute to the work! We will update the below table with these upcoming calls and their relevant details. Follow the community forum for updates on upcoming meetings!

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Summaries, recordings, and meeting materials from DUC Calls are posted to this wiki page.

Zoom Connection Details

Join from computer or mobile: https://datausecommunity.org/meeting

Meeting ID: 828 2453 9607                     Password: 1

Meeting TitleSession Overview

Identity Management Collaborative Session

Wednesday – November 29


8-9:30 am EST | 12-1:30 pm UTC | 1-2:30 pm WAT | 2-3:30 pm SAST | 3-4:30 pm EAT

The Join the November Patient Identity Management meeting will focus on Community members sharing information and experiences regarding using Biometrics for identity management. Are you currently, or planning to, use biometrics to support patient matching? The Community is seeking volunteers to share at this session.to connect with fellow community members on patient identity management efforts. During this 90 minute session, the community will continue the conversation on the Patient Identity Management Toolkit with an introduction to the Biometrics Module. This draft highlights the key considerations for implementing biometrics as part of identity management in health care and public health programs, and showcases case studies from previous DUC community events.

There will be no presentations during this session. Come prepared to provide input based on your experience to validate, enrich, & improve the usefulness of the approach. With your input, this approach will be refined over time & will serve as a shared knowledge base for patient matching activities. If you are unable to join the live meeting, we invite you to share your comments inthe virtual forum

The Patient Identity Management Toolkit is currently housed in the Data Use Community Gitbook. This Toolkit is intended to be a space for all who are working in identity management to bring together resources, share work in progress, and collectively develop key takeaways and considerations for those planning for or currently implementing an identity management strategy. This is a massive, ongoing group effort. We invite all individuals, groups and Communities who are working in this area to share additional resources, documents, or upcoming webinars in this Toolkit space. To contribute, please share on the DUC virtual forum or email the Secretariat, info@datausecommunity If you are interested and would like to learn more, or have requests, please share in the virtual forum or contact Mary Pittman at mapitt@regenstrief.org.





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Visit our website to sign up for information regarding the Data Use Community (DUC)! https://ohie.org/duc



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Upcoming Conferences and Events

Come connect with the DUC! We will be sending representatives to conferences and events soon!

Shareable Message on the DUC

Do you want to share the DUC with your network? Check out the shareable message below to copy-and-paste to your peers and colleagues.

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titleExpand to View the Shareable Message

Hello,

I wanted to reach out and share the Data Use Community (DUC) with you! The DUC is a network made up of organizations and individuals currently focusing on guidance regarding approaches for enhancing treatment continuity. 

I have recently joined this community and thought it would interest you as well. Here are a few ways to start contributing:

I hope we can attend the next meeting together! 

Best,


Archive: Former DUC Meetings

As the DUC was beginning to host regular community touch points, we scheduled meetings on a monthly basis along with follow-up calls. As the DUC grew and progressed in their efforts, it became clear these monthly meetings were no longer needed to sustain the work and connection of the community. We now host meetings throughout the month as needed, as it works for community members, and on topics that are timely for the work.


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Monthly Community Meetings

The monthly community meetings are the heart of the Data Use Community. This was the original meeting point where the whole community could to come together to discuss and hear the work of this making efforts in-country on data use, HIV prevention and the efforts within the HIV treatment cycle. Each month had a different focus that will be advertised as soon as possible.

DUC Debriefs

The DUC Debriefs were informal sessions, facilitated by the secretariat team to allow for additional collaboration and follow-up conversation on that month's community meeting topic(s).