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Welcome to the Data Use Community (DUC)!

The DUC was built to leverage the expertise in clinical care, systems, policy, and data reuse and analysis, along with the field experience available across implementing agencies, ministries, and implementing partners, to create a peer support network of interested practitioners. The DUC’s initial focus is on guidance regarding approaches for enhancing continuity of treatment and interruption in treatment.  We propose to then extend this tested approach to address other evolving priorities that can only be addressed through individual patient-level data.

The DUC will operate in a collaborative and iterative way to support Ministries of Health and country implementers.

The DUC is initially working towards the following goals:

  • Be initiated with founding members with relevant clinical expertise for HIV prevention, treatment, and care, informatics, and data science.
  • Consolidate best practices, drawn from country experience, to a generally applicable and context-specific approach to improve continuity of treatment and reduce interruption in treatment, with specific attention to the data and systems approach.
  • Ensure field experience sharing, improve interagency coordination and collaboration, and integrate group efforts to support program goals.


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titleJoin Us!

If you are interested in joining, feel free to join our mailing list on our website. Also, feel free to contact info@ducinfo@datausecommunity.ohie.org if you have any questions.


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Monthly Outlook of Upcoming Meetings of the Data Use Community

The DUC hosts multiple meetings that are open for all to participate and contribute to the work! We will update the below table with these upcoming calls and their relevant details. Follow the community forum for updates on upcoming meetings!

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Summaries, recordings, and meeting materials from DUC Calls are posted to this wiki page.

Session Overview

Description
Zoom Connection Details
Wednesday, March 9, 2022

Listen & Learn Session: Get to Know the DUC

9-10 a.m. (EST) / 5-6 p.m. (EAT) / 4-5 p.m. (SAST) / 2-3 p.m. (UTC)

The DUC will host this event for those new or newer to the DUC! We will provide an overview of the community, share ways to engage, work completed so far, and answering participant questions. 

We ask that existing members of the DUC share this with colleagues who may have an interest in the work of this community!

Join from computer or mobile:

 
iu
zoom.us/j/83622178462?pwd=UTc1WjJ4TFpBRVBQckpYWVBCeDdPQT09

org/meeting

Meeting ID:

836 2217 8462

Password: 754960

Wednesday, March 30, 2022

DUC Patient Identity Workshop:
Sharing Solutions, Lessons Learned and Best Practices around Patient Identity

9-10:30 a.m. (EDT) / 4-5:30 p.m. (EAT) / 3-4:30 p.m. (SAST) / 1-2:30 p.m. (UTC)

Who should attend:  

  • Countries / Partners who have implemented identity solutions
  • Countries / Partners who are standing up or planning identity solutions

Workshop Description: 

This interactive workshop is designed to facilitate the sharing of different perspectives, challenges and learning related to managing patient identity across facilities. In this session, participants should come prepared to learn from others and share:   

  • What needs drove you to share data across facilities? 
  • A short overview of your current approach to identifying duplicate patients and the scope of any implementations. 
  • What hurdles have you overcome and what do you wish you would have known when you started?  
  • Share challenges you are facing as you mature and scale identity capabilities 

We expect that participants may have challenges, lessons learned or experience with approaches to topics such as:  

  • Governance 
  • Uniquely identifying patients (demographics, biometrics, national identifier, other approaches)
  • Data quality 
  • Matching policies (process for matching, handling near matches) 
  • Handling multiple identities for a patient
  • Handling a single identity shared by more than one patient
  • Linking / unlinking records

    828 2453 9607                     Password: 1

    Meeting TitleSession Overview

    Identity Management Collaborative Session

    Wednesday 24 April 2024 at 9 am ET | 1 pm UTC

    We will continue to discuss what work countries are doing around patient identity management. The goals of these monthly meetings are to:
    • Provide space for peer learning on patient identity management.
    • Build community linkages between teams working on patient identity management.
    • Begin to gather common practices, challenges and experiences to be documented in the Patient Identity Management Toolkit


    The Community is always looking for volunteers to share how different countries are linking person level data systems together. Please reach out on our community forum if you are interested in learning more.





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    title2022 Year-In-Review

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    Info
    Visit our website to sign up for information regarding the Data Use Community (DUC)! https://ohie.org/duc



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    Upcoming Conferences and Events

    Come connect with the DUC! We will be sending representatives to conferences and events soon!

    Shareable Message on the DUC

    Do you want to share the DUC with your network? Check out the shareable message below to copy-and-paste to your peers and colleagues.

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    titleExpand to View the Shareable Message

    Hello,

    I wanted to reach out and share the Data Use Community (DUC) with you! The DUC is a network made up of organizations and individuals currently focusing on guidance regarding approaches for enhancing treatment continuity. 

    I have recently joined this community and thought it would interest you as well. Here are a few ways to start contributing:

    I hope we can attend the next meeting together! 

    Best,


    Archive: Former DUC Meetings

    As the DUC was beginning to host regular community touch points, we scheduled meetings on a monthly basis along with follow-up calls. As the DUC grew and progressed in their efforts, it became clear these monthly meetings were no longer needed to sustain the work and connection of the community. We now host meetings throughout the month as needed, as it works for community members, and on topics that are timely for the work.


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    titleExpand to view descriptions of these calls

    Monthly Community Meetings

    The monthly community meetings are the heart of the Data Use Community. This was the original meeting point where the whole community could to come together to discuss and hear the work of this making efforts in-country on data use, HIV prevention and the efforts within the HIV treatment cycle. Each month had a different focus that will be advertised as soon as possible.

    DUC Debriefs

    The DUC Debriefs were informal sessions, facilitated by the secretariat team to allow for additional collaboration and follow-up conversation on that month's community meeting topic(s).