Session Name: Case Based Surveillance :
Time / Room: 9:30 - 10:30 Marquee
Presenter: Eric, RIchard, Samuel L
Attendees:
Questions
- how do you link CBR to the EMR/EHR
- how do CBR and iDSR link together
Notes:
- evolving data needs for public health action
- HIV case based surveillance on the path to epidemic control
- from care continuum to surveillance workflow
- mapping of events
- case reporting--initial diagnosis/initial recognition (iDSR)
- case based surveillance looks at the continuum with ''triggers'
- data collected bby paper in most cases
- presented information about CBR HIV and OpenMRS- demo available on youtube video
- HIE essentials for HIV CBS (Uganda)- patient goes through the continuum of care
- who is this patient
- where did they get care
- testing and clinical cascade
- secure data exchange and then need for deidentified data ( surveillance data repository/ indicator data repository
- need ability to deidentify every time that you get a new case- ' am I really new'???
Questions
- when is data deduplication done and how
- can have retrospective at the central level
- asynchronous data exchange
- need tools to dematch if you have matched wrong
- public health surveillance isnt the same as clinical care delivery
- work for the individual patient vs public health perspective (government role)
- complementary use case with cliincal care and HIE
- case based surveillance-- does it work? example of SA where it seems to not work
- good clinical care data system allows you to have better data
- is CBS more of an analytic system that sits on top of the individual patient record system
- need to identify HIV patients as soon as possible ( rare to come in at the point of 'sickness')- system must be able to capture this
- do automated reporting from the EMR and support the 'message and payload' from these systems
- ' just in time architecture'
- helpful concept; if the framework for HIE exists, then you can respond quicker , deliver excellent care, and there is no conflict
- value of the case based reporting form- establishes relationship with the government for care, including what and when you will share public health information
- other value of CBR report- Rwanda
- initial iinformation from counseling (risk based questions)
- as countries get to 90/90/90 or 95/95/95-- see a push to get to the last cases (and need to tease out the data in a meaningful manner)
- unique ID- permission to use an application number (number that you get when you apply for your ID) for CBS finding and tracking
- what is the clinical care model
- every patient is supposed to get viral load/year- that ends up in some countries over a million tests/ year